治療食を行っているフェニルケトン尿症患者の自己評価．心理学的支援

Self-estimation of phenylketonuria patients on therapeutic diet. Psychological support.

• Kostas Konstantinos Iakovou
• Kleopatra Schulpis

抄録

目的 自尊心とは、自分の自己概念に含まれる資質や特性が肯定的であると認識される度合いのことである。本研究の目的は、フェニルケトン尿症（PKU）患者の自尊心スコアを「厳格」、「緩い」、「食事療法をしない」に分けて評価することであった。60名のPKU患者を3等分した。方法 グループa."厳密に」、グループb: 「loosに」およびグループc."オフダイエット"。これらの患者のために、自尊心スコアのための特別な質問票を作成した。結果 精神的支援前のa群では、自尊心が6/20(30%)と非常に高く、9/20(45%)が高く、5/25(25%)が中等度であった。b群は4/20（20%）が非常に高く、7/20（35%）が高く、3/20（15%）が中等度で、残りの患者は自尊心の程度が低かったが、支援後は10/20（50%）が非常に高く、5/20（25%）が高く、3/20（15%）が中等度に変わり、2/20（10%）は変化なしであった。c群では、1/20（5%）は非常に高い自尊心を示し、7/20（35%）は高い、6/20（30%）は中程度、6/20（30%）は低い自尊心を示したが、支援終了時には6/20（30%）は非常に高くなり、8/20（40%）は高い、4/20（20.0%）は中程度の自尊心を示したが、残りは変化なしであった。結論 非常に高く、高い自尊心の程度は PKU の食事に従う患者で示された。中等度と低い自尊心の程度は主に患者のloosとオフの食事療法で発見されました。心理的なサポートは一般的に自尊心の程度の改善になります。

Objectives Self-esteem is the degree to which the qualities and characteristics contained in one's self-concept are perceived to be positive. The aim of this study was to evaluate the self-esteem scores in phenylketonuria (PKU) patients on "strict", "loos" and "off diet". Sixty PKU patients were divided in three equal groups. Methods Group a: "on strict", group b: "on loos" and group c: "off diet". A special questionnaire for self-esteem scores was created for these patients. Results Before psychological support, group a patients demonstrated 6/20 (30%) very high self-esteem, 9/20 (45%) high and 5/25 (25%) moderate. After support 14/20 (70%) were turned to very high, 5/20 (25%) represented high except one whose degrees remained an altered. group b 4/20 (20%) were very high, 7/20 (35%) were high, 3/20 (15%) moderate and the rest of them showed low self-esteem degrees, after support, 10/20 (50%) showed very high, 5/20 (25%) became high, 3/20 (15%) turned to moderate and 2/20 (10%) remained unaltered. Group c, 1/20 (5%) were very high self-esteemed, 7/20 (35%) were high, 6/20 (30%) were moderate and 6/20 (30%) with low self-esteemed, at the end of support, 6/20 (30%) become very high, 8/20 (40%) with high, 4/20 (20.0%), moderate self-esteem whereas the rest were unaltered. Conclusions Very high and high self-esteem degrees were demonstrated in patients who follow their PKU diet. Moderate and low self-esteem degrees were predominantly found in patients on loos and or off diet. Psychological supports commonly result in amelioration of self-esteem degrees.